Friday, 26 June 2009

I blame Stu

for my lack of posting! I have to share the laptop with him at the moment as his has sadly keeled over and died, so I haven't really been spending that much time online, so I'm blaming that for the HUGE gaps in space between posts :D

I'm still waiting to hear from uni about if I have a place or not, but it has been exams and results etc so I was kinda expecting them to be a bit slower than normal, but I would still like to know! I'm starting to panic too as to whether or not it's the right choice for me, I'm sure it is but if it isn't and I really hate it I can always drop out or simply swap over to something else.....again! I just wish I could do Medicine, that would make things so so much easier, but I can't and so I have to do something that in the back of my head I will always know is something I wouldn't be doing otherwise, it's second best and will never have the whole of my heart behind it.

In other news, I may be getting a charity shop! I have emailed the muscular dystrophy folks and told them that I would like to start up a charity shop and they have said they will have discussions about it, so there is a glimmer of hope there! I'm not too sure how I will cope with all of this but I have decided that I will be a behind the scenes person. I don't think that it would be fair to put me on a rota for work as I can't say when I would be able to do it.

I went to watch the Sally Naden show on Monday with Mum at BBC Radio Lancashire and it was really good! We are most certainly going to be going again, and they even asked me if I would like to be a guest on the panel! I think I will wait for that though until I'm back at uni and/or have a charity shop, that way I actually have something to talk about! :P

Tuesday, 2 June 2009

Well, I've been told I have mitochondrial myopathy, not been tested exactly or been told which version of MM I have....but this is what I've been told to write on forms and stuff, so we shall go with that :p There's a link in the side bar bit if you wish to know more about it.

In other news, I hate summer!!!!!!!! I hate the heat,, I hate the clothes, I hate the way people turn into idiots in beer gardens etc etc......

As for uni I'm still no further on, should fill in some forms though really, in fact I may well do that now!

Saturday, 16 May 2009

Eurovision

Well we didn't win but we got into the top 5 which considering the run of nil points for the last few years I think we did quite well!

Anyway...still no hospital news, as per, I'm awaiting some more NHS letters to appear as I'm being referred to other departments and being recalled to Neurology etc, there may even be a day trip to hospital if they want blood tests as I have a HUGE phobia of needles and so need to be given diazapam and so they may want me to go in and sit on a bed for the day to make sure I don't explode or something, to be honest I'm not too sure why, but hey it will be a fun filled trip out for me :p

University is getting closer, ever so slowly! I feel at the moment like I'm just doing things so that I can tick the boxes to say that I have done them! Still at least I'm getting closer to being back in the classroom! I have even thought up an idea for a future career, greeting card designing! I'm going to start now, then when I get to university I will already be able to use photoshop/flash/illustrator at a basic level at least. I do have a new found love of illustrator though, may be getting a graphics tablet off a friend soon too, which should add unknown dimensions of joy! :D

Sunday, 3 May 2009

So, I'm applying for Creative and Cultural Industries (web & multimedia), apparently there's no moving them on the A level thing with Neuroscience, so sod them! I think this is a very unfair way of doing things, it doesn't encourage mature students back to education at all. Anyway, I don't have to re-apply or anything as I'm going through Fresh Start, the bumf should arrive in the week so I will fill it in and send it off asap, I want to know I have a place at uni, I can start organising myself then, I find it hard to cope with open ends and unknowns.
Still no hospital news though, I rang the doctors on Friday and they haven't heard anything so I'm going to have to ring the hospital and moan at them a bit more! It's been 6 weeks since my MRI and 4 weeks since the response tests, I'm so fed up with having to wait! I know several people who have got ill, gone to the doctors, been diagnosed and treated in a couple of weeks or months, after 6 years I'm getting pissed off!

Friday, 24 April 2009

Don't know what's going on with uclan, they rang me to say they don't think I can do Neuroscience as I don't have an A level in science (I'm 25, how is it relevent!?) but I explained that I was told there wasn't going to be a problem and that I actually want to go part-time anyway. This apparently should make a difference so woman on phone has emailed the Neuroscience course leader and is ringing me back....yesterday! I assume the course leader hasn't emailed her back so there is no news as of yet. I'm so confused I really don't know what I'm doing at all, and if I don't do Neuroscience, which is something I'm mearly settling for anyway, then I don't know what to do, I've thought about web and multimedia though. I was thinking I like to design websites etc and was going to teach myself flash anyway, plus if I could do web design I could work from home, maybe with Stu on some projects, never know! It may be worth a try but I'm not too sure if I would be able to stick at something I didn't choose first off.

Still no hospital news

Monday, 20 April 2009

The weather is very nice at the moment, we went to the pub on the docks yesterday with mum and jeff and it felt so nice to be able to sit outside. May go to the park tomorrow, I haven't been to the cafe there yet and it's been open about 12 months!
I was in garden this morning, it's coming on really well, I've planted up all of my hanging baskets and there are seeds and bulbs sprouting everywhere. I planted some more seeds this morning so hopefully they will take soon, chilli plants, melons and hanging tomatos. I planted an onion too, I took it out of the fridge as it was growing roots! I'm not too sure what will happen with it, but it will be fun finding out!
I'm hoping to go to the doctor's tomorrow, will have to ring up in the morning let's hope that we have some news from the hospital!
I still haven't heard anything from uclan yet either which is starting to annoy me, they said that I would have heard before Easter and I haven't. ahhh well!

Tuesday, 14 April 2009

I haven't posted in a while but then again I haven't really been online that much, the Internet is boring me at the moment, all those pages and I can't seem to find anything interesting!
So, what have I been up to while avoiding the interwebs?
I didn't make it to the Rasmus gig, I got as far as the train station, and while waiting for the train realise there was no way I was going to be able to get the train, walk to the gig, stand there for two hours and then get home, as much as Manchester hospital is meant to be nice I didn't fancy a trip there. What a shame I had spent all that money for nothing; gig tickets, train tickets, taxi to the station! Stu was very good with me though and we had a glass of wine on the station while I tried to contact people who may buy my tickets (couldn't find anyone) and then we called into the pub for one, we had to walk past anyway on the way to the taxi place, so it would have been rude not to, and anyway, I needed to rest! It was quite nice to be out having a drink though, so all wasn't lost, just angry at myself for buying the tickets in the first place, I'm always too ill to go to places and do things, so I don't know why I buy tickets anymore, never again.
Over Easter we have seen both sets of parents, met up with Stu's family in town on the Friday and had a mooch about the shops before getting soaked and coming home again! We saw Mum and Jeff on Sunday and went to Bowland, with a picnic as it was a nice day. I spoke to a lady from the local owl sanctuary, she had a sweet little owl with her called Tiddles, it's made me want an owl now ha ha!
Bank holiday Monday we did the traditional trip to the shops and bought stuff for the garden! Poundland has a great range of things, even plants! I'm hoping to get into the garden maybe tomorrow and plant up the things I bought, it's been too miserable today, and to be honest so have I!
In general the garden is coming on, I have things starting to shoot up all over the place, even in tubs on the various window sills inside, the office is quite a greenhouse! I need to get the walls painted and some trellises put up now really before too many things start to grow, I'm thinking it will all look rather nice by the end of the summer, I shall have to take some photos of it's progression.

Still no news from the hospital or from UCLAN, bit miffed with both if I'm honest, I may start ringing people if I don't hear anything in a few days.